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Fetal Alcohol Syndrome (FAS),
is the name given to a group of physical and mental birth defects which are the
direct result of maternal alcohol consumption during pregnancy. FAS is now known
to be the world's leading cause of mental retardation. Symptoms can include
growth deficiencies before and/or after birth, major organ damage, skeletal
deformities, damage to the Central Nervous System resulting in learning
disabilities, behavioural problems, lower IQ, and facial characteristics common
to all children diagnosed with FAS.
Fetal Alcohol Effects (FAE), is the name given when all the characteristics
required for a diagnosis of FAS is not present. This does not mean FAE is a
lesser problem. Children who have FAE can still display the same learning
disabilities and behavioural problems as a child with FAS, and it is largely
under diagnosed. Research has shown that as many as 1/3 of learning disabled
children (not otherwise diagnosed) may have been affected by alcohol before
birth. Figures show that between1 and 3 per 1000 live births in the UK are born
with FAS, and many times that number are affected by FAE.
THERE IS NO KNOWN SAFE
LIMIT FOR ALCOHOL CONSUMPTION DURING PREGNANCY!
The National Alcohol Harm Reduction
Strategy:
A Submission by FASawareUK
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Why should the Government
get involved in the managing the harmful effects of alcohol misuse? At what
point does the Government intervention become justified?
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The Government is already responsible for all
NHS guidelines, include those covering the safe consumption of alcohol.
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The Government should review, extend and
develop existing guidelines to take account of Foetal Alcohol Syndrome.
(Hereinafter referred to as FAS).
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Education and Awareness training regarding FAS should not be left to volunteer
groups. The Government should be responsible for the accuracy and the
uniformity of information regarding FAS. Small, scattered volunteer groups can
often have conflicting information. Uniformity and accuracy are of the utmost
importance.
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How far is alcohol misuse
a matter of individual responsibility and when does Government have a
responsibility to intervene, whether through services, legislation or
persuasion?
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Government intervention is
justified now.
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Through our groups contacts with various academics
and professionals in the alcohol field, as well as the feedback we received at 2
recent conferences, one of which we hosted, FASawareUK is aware that there is a
demand from professionals for information, advice and solutions to the problems
posed by FAS.
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How can we strike a
balance between individual and community rights and choices?
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Informed
choice is a democratic right. To be fully and correctly informed of the damage
caused by drinking before, during and after pregnancy is vital. Only then can a
woman and her family make an informed decision whether to continue drinking or
not.
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The
community also has a responsibility to provide care and support for it’s less
fortunate members who had no say as to whether or not they were affected by
alcohol.
The community has a responsibility to provide:
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What are the respective roles and
responsibilities of consumers, voluntary groups, commercial interests and
others?
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Consumers need to be
correctly informed so that they can make their own decisions.
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Voluntary
groups need to be sure their information is correct and up to date.
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Commercial
interests have a responsibility to educate the public about the proper use of
their products and services.
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All
agents are equally responsible for honest information about all aspects of their
roles/products and should work together for the common good.
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What principles should
underpin a national alcohol harm reduction strategy?
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That
alcohol related problems could affect anyone, at any time without prior warning
regardless of age, race, class etc.
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Education must therefore be a
vital principle of the strategy and must be delivered by means of all available
channels to ensure that it reaches everyone.
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There should be warnings on
all alcohol containers (including Alco pops) about the dangers of alcohol to
health and the unborn child.
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That FAS should be considered
across all area’s of the strategy.
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How
do you define alcohol misuse? What factors do you take into account?
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Alcohol
Misuse forms part of a continuum starting with alcohol use, through alcohol
misuse then Alcohol Abuse and finally Alcohol Dependency.
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Alcohol Abuse and Alcohol
Dependency are both medically diagnosable conditions using internationally
accepted criteria such as DSM IV and ICD10.
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Alcohol Misuse therefore could best be defined, for the purposes of the
National Alcohol Harm Reduction Strategy, as any episode of drinking which has
the potential to lead to harm to self, others or to society and which does not
fit the diagnostic criteria for alcohol abuse or alcohol dependency.
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It
is important that any strategy recognise the above distinctions.
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In
considering the meaning of what constitutes a definition of an episode of
drinking which has the potential to lead to harm to others the following factors
should be considered:
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Alcohol
has contributed to the “Ladette” culture of binge drinking, where women are
drinking regularly in larger quantities well over and above the 2 units. This
can lead to drunken, unprotected sex and consequently pregnancy.
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In
Governments pregnancy leaflet “Drinking for two” the advice given is that 1-2
units of alcohol once or twice a week is acceptable. This is questionable in the
light of recent research that suggests there is no known safe level of alcohol
consumption whilst pregnant.
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It
states in the Government Indices, that the UK has the highest teen pregnancies
and underage drinking in Europe. Research is needed to explore the relationship
between these two facts – especially so as if there is a linkage then these
children will be at a higher risk of prenatal alcohol related harm.
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The
foetus’s brain is developing all through the pregnancy.
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The
brain is still developing into the early twenties.
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What
drinking patterns should an alcohol harm reduction strategy seek to effect? How
susceptible are patterns to change? Where should Government concentrate its
efforts in prevention?
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Drinking forms a large part
of our social culture. Some people even plan major life events around
alcohol. We therefore need to appreciate that we are talking about cultural
change.
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Binge drinking has become a
major problem, especially for women, who may consume the government’s
recommended safe weekly quota of 14 units of alcohol in a single sitting.
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The
Government should concentrate its efforts in prevention by developing an
education programme, which should be integrated with smoking and drugs education
programs in schools.
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The
programme should ideally commence at age 7 bearing in mind that statistics show
that children as young as 9 are experimenting with alcohol.
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Alcohol education programmes should be ongoing, continuing throughout school
life.
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The United States also utilises public service
announcements, brief interventions by medical personal and signage laws at
points of sale.
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US
Studies have shown that just one form of education in not as effective as
several forms of education combined.
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This is especially true of
education that is done at an early age.
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The evidence shows that when these forms of education are combined with other
initiatives aimed at adult consumers a significant reduction in risky drinking
behaviours can result.
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Is there a relationship
between trends in drinking and wider social changes e.g. the spread of higher
education, changes in workplace culture, later marriage and/or family
formation? Where does this suggest we need to focus attention-influencing
behaviour?
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Attention needs to be focused particularly on women; Education
and Awareness campaigns are needed to prevent the lasting damage that alcohol
can cause to the Foetus.
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Government Indices show that the North West has the highest
teen pregnancies in Europe and underage drinking. There is also a problem in
the area of bootleg alcohol coming in from Europe making it economical to
drink. The links between the cost of alcohol and alcohol related damage to
health, as shown by statistics for liver disease has been well documented. In
this area over the last 12 months there has been an increase in babies born
with physical and mental disabilities.
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The 1990 US Census report show that the women most likely to
drink is white with two year associate’s degree or a baccalaureate degree and
earns an income over $20,000.
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A Swedish study demonstrated that the stresses of the
workplace, in combination with after hour’s homework escalate for women and
probably contributes to the increased drinking among modern women.
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Very early
marriage, very late marriage, no marriage (living together), marriage under
duress, a significant other who drinks financial and personal problems and a
family history of alcohol abuse can all lead to risky drinking behaviours.
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One
group we need to focus on specifically is young people, where the evidence
suggests a rise in consumption, particularly by young women. Are there other
groups we should be focusing on? For example are there specific issues around
minority ethnic attitudes to, and use of alcohol, which we should bring into our
analysis?
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The
need to belong to a social group brings peer pressure to all parts of the
community, including ethnic groups (i.e. secret drinking/drug taking
particularly with third generation immigrants) and starts during the primary
school years.
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The
media influences social habits of a wide nature including appearance,
entertainment, what to eat and drink as well as behaviour by giving a voice to
the wrong type of role models. People are taking greater risks because others
are appearing to get away with it.
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It is easy to focus on the
negative aspects of alcohol use and misuse. But what are the positive cultural
and behavioural (as opposed to economic) aspects? What parts of culture would
change for the worse if we did not have alcohol?
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Alcohol has been part of our
religious and ceremonial society since the beginning of time. When used
sparingly (it used to be expensive for a society to brew alcohol) and for
special occasions, it is beneficial and bonding. However the blatant use of
alcohol in our society has degraded it to psychological “oil” that lubricates
the way for conversation and superficial bonding. It has taken the place of
honest, open relationships and prevents people and governments from openly
facing the problems of education, employment and other economic quandaries.
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Is there such a thing as
recognisably English drinking culture and if so what does it look like? What are
the factors, which influence it, for example are there sharp regional
differences? Does it look different for different ages groups?
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The so-called “Ladette”
culture is making the headlines more and more. This involves young women who
binge drink. Often this is linked with the pub-crawl cum nightclub trawl. Some areas are more noted for it and they should be identified as causing
concern.
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Young women often start
their drinking habits on the streets at a very early age and in family
homes. It is a known fact that a large number of young people are under age
drinkers. They look older than their true age and are putting themselves at
risk. Identity/Proof of Age card schemes could be encouraged as part of the
answer here.
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Pubs now offer two for the price of one and happy hours to
encourage drinkers into their premises knowing full well that once a customer
is in the, they are reluctant to leave. This also encourages binge drinking.
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Broad regional differences
occur between rural and urban areas (WHO Global Status Report on Alcohol).
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Women tend to start
drinking at a later age than men but then tend to consume more and develop
serious medical problems at an earlier age.
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Women’s drinking can cause
Foetal Alcohol Syndrome, Foetal Alcohol Effect and or other alcohol related
birth defects/disorders.
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Men’s
drinking can produce offspring who are hyperactive and unable to solve test
problems and have gross motor skill problems.
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What factors influence
behaviour-fashion and marketing, family background, education and information,
financial, legal and regulatory, scientific, environmental? Which are the most
influential in your view? How easy is it to exert influence through those
factors?
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Fashion and marketing within
the pop/media influences a wide range of social habits including appearance,
entertainment, what to eat and drink and behaviour by giving a voice to the
wrong type of behaviour.
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People are taking greater risks because others are appearing to do so and to get
away with it. The wrong role models are always in the “news”. Positives role
models/heroes should be highlighted.
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Alcohol dependency and
alcohol abuse tend to run in families, there is evidence that some individuals
are genetically predisposed to develop alcohol related problems.
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The alcohol industry must
learn to diversify the nature of their product lines in order to ease their way
out of their way out of their dependence on alcohol as a primary source of
income.
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The Government must decide
whether it wishes to protect its youngest and unborn citizens above the rights
of companies to make money and of adults to determine the life outcome of
children before they are even born. It is not easy to change the mind of
businesses that seek to make a profit but the alternative in the long term could
be a general population with lower IQ’s.
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How do attitudes to risk
affect use of alcohol?
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Young people
have a tendency to think, “It won’t happen to me”. This causes a great deal of
complacency that in turn increases the risk factor applying to all that they
do. Greater access to information and education at all ages is vital. See also
replies to questions 11 and 12.
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Many people have the impression that “moderate” drinking is not
harmful and carries no risks. The risk of alcohol related harm does not
suddenly appear after a given number of units of alcohol.
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The use of “moderate” must be carefully defined as it means
different things to different people, including the different genders. The US
National Institute of Alcohol Abuse and Alcoholism have stated that 1 drink a
day is moderate for a woman and 2 drinks a day is moderate for a man. More
than “moderate” means a greater risk to organ failure, brain damage as well as
a possible inclination towards alcohol dependency. For women there is an
increased risk of breast cancer.
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These figures are substantially different from the UK
government’s suggested safe drinking limits. Is it possible that the UK is
willing to accept a higher level of risk?
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How
do you define harmful drinking? What factors do you take into account in
deciding whether heavy drinking has become problematic drinking?
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Please see reply to Question 6.
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It is a fallacy to believe that drinking has to be heavy to be
problematic. How many road traffic accident deaths occur each year in which a
driver has been drinking, but not heavily? How many workplace accidents? There
are many settings where the consumption of any alcohol whatsoever increases
risks – and surely this should be included in any definition of problematic?
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There are additional risks, and therefore problems, when
alcohol is combined with other factors such as legal or illegal drugs.
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Foetal Alcohol Syndrome (FAS) can be caused before a woman
knows she is pregnant. It therefore requires an intense pre-warning and
information system long before the woman even considers getting pregnant or
even wants to.
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The unborn child is at risk of being born with physical and
neurological disabilities of varying degrees. In addition to this there is
evidence that the child is likely to have a higher risk of predisposition to
alcohol related problems in later life, depression and mental illness.
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According to recent findings by
Dr Mary Connor of UCLA published in the American Journal of Drug and Alcohol
Abuse psychiatric disorders, in particular mood disorders, are common in
children exposed to alcohol in the womb.
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Dr Mary O'Connor and
colleagues from the University of California, Los Angeles (UCLA) studied 23
children between the ages of five and 13 years who were referred to UCLA's
Foetal Alcohol and Related Disorders Clinic because of heavy exposure to
alcohol in the womb. After assessing the children's intellectual and
psychological functioning, researchers concluded that 87 per cent of the
children met criteria for a psychiatric disorder. Twenty-six per cent were
diagnosed with major depressive disorder or adjustment disorder with depressed
mood and 35 per cent met criteria for bipolar disorder.
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Although the mechanisms underlying risk for mood disorders are
unclear at present, the team point to recent findings showing structural
damage to specific areas of the brain in children parentally exposed to
alcohol.
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We therefore have to conclude that alcohol use by pregnant
women should be a special cause for concern and must be taken into account
when formulating any definition of harmful drinking.
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How
clear is the evidence both for the health costs and the health benefits of
alcohol? Are there key pieces of research of which we should be aware? Where are
the gaps in evidence?
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There may be some benefits to health in drinking alcohol in
moderation but there is a fine line between this and drinking to excess. On
balance the benefits are heavily outweighed by the risks.
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Estimates of the health costs of
alcohol have been made, i.e. by Alcohol Concern in their 2002 report “Your
very good Health” who came up with a figure of £3 billion per annum. Unless
research is done however it will be difficult to ascertain the true cost to
the NHS of alcohol related illnesses and effects.
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Apart from the direct health related costs of drinking there
are many others but one that is not so well known is the effect on the unborn
child. In the light of the statistics given in 14 above the ongoing costs of
lifetime support for FAS children must be substantial and further research
would appear to be warranted.
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Because medical practitioners often fail to identify alcohol as
a causal factor many physical and mental problems remain undiagnosed or are
misdiagnosed. There is evolving research that indicates that alcohol may be a
contributing factor in conditions such as autism, cerebral palsy, epilepsy and
may even effect the genetic development of cells.
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Death certificates normally only require the primary cause of
death. It might be more accurate to also list contributing factors. We might
then find that alcohol abuse plays a major role in many illnesses and causes
of death.
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The statistics for child abuse, domestic abuse, suicide,
learning disabilities, depression and teen pregnancy also need to be examined
if we are to arrive at a true picture of the health related costs of alcohol
misuse.
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What
are the costs for the NHS both directly and indirectly due to alcohol? We will
be examining evidence on this but would welcome your views and any evidence you
think we should be aware of.
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What,
in your experience, are the most appropriate means of prevention of alcohol
dependence and serous alcohol misuse? What forms of training are most
appropriate for professionals in health and social care, as well as other
fields? Who plays a role in prevention?
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The most effective means is education in the primary grades of
school.
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This must be in conjunction with the banning of
advertisements on television, magazines and billboards; especially those bill
boards shown during sporting events.
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Warning signs at points of sale,
liquor stores, restaurants and pubs are also effective in conjunction with other
forms of warnings and information.
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Professionals (medical personnel
and educators) should be trained to know and recognise the symptoms of Foetal
Alcohol damage
so that the parents can work effectively with educators to
be properly informed and can take remedial steps for the child.
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Studies have shown that it is
essential to have organised support groups in a variety of settings for
convenience
and availability.
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“Brief
interventions” can be offered to patients who have been identified as a risk
from alcohol misuse. They may consist of a short session with a doctor or nurse
to discuss a patient’s drinking and to offer help and support to cut down on
alcohol intake, if the patient wishes to do this. How effectively do you think
those at risk are identified? How well have you found brief interventions to
work and how might they work better?
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There is evidence that “brief interventions” can be effective
when offered to those patients at risk from alcohol misuse. However the
evidence also suggests that they will not be effective for those patients who
are alcohol dependent or heavy alcohol abusers.
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It is therefore essential that medical practitioners delivering
brief interventions should have the necessary assessment skills to be able to
differentiate.
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It is also essential that the facilities exist to refer on to
appropriate services without delay. Timing is an important factor – often the
circumstances that lead to the patient seeking medical help at that time mean
that there is a window of opportunity to intervene. This window will not
necessarily remain open for long when the immediate medical crisis has past.
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Posters and brochures containing information about alcohol and
support groups might be placed in medical and dental offices, at the chemist,
other allied medial and health facilities. Consistent reminders of the dangers
of alcohol misuse and sources of help may be more effective than brief
interventions.
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Do current
treatment for alcohol dependence and hazardous drinking work? Are they
sufficiently tailored to meet differing and individual needs? Are there other
forms of treatment we should be aware of? Is there a need for guidance for the
commissioners of local treatment services? How should individuals best access
treatment services?
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Current research such as Project Match clearly shows that
treatment works.
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Research has shown that alcohol dependent women do better in a
single sex treatment setting.
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One of the major obstacles blocking women coming forward for
treatment is the fear of loosing their children – although there can obviously
be child protection issues when parents are drinking problematically policies
need to be framed in such a way as to ensure that they do not become another
obstacle to seeking help.
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Residential treatment facilities which accept mothers together
with their young children can have certain advantages – the mother can learn
parenting skills and begin to repair the mother/child bond during the course
of treatment, the child can be assessed for FAS, FAE or other problems related
to the mothers use of alcohol and a structured care plan can be worked out for
the child which can be fully integrated with the mothers own care plan.
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Such mother and baby facilities here in the UK have a high
failure rate because of economic factors associated with the funding
system. There is a good case for suggesting that they could be provided as a
National Resource.
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Alcoholism and alcohol related problems are normally quite
complex and often require more than just physicians or psychologists working
together. A program in Washington State (U.S.A.) for alcoholic mothers
combines physicians with therapists, social workers, family counsellors to not
only deal with addiction but to help with seeking services for the children.
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What
can we learn from drugs prevention and treatment?
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That you are even asking this question highlights a
problem. Alcohol is a drug, albeit a legal one. A comparison of the numbers of
alcohol related deaths and drug related deaths in the UK reveals that the
number 1 drug problem in the UK today is not heroin, crack cocaine or ecstasy
– it is alcohol.
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Within the drugs treatment field it is accepted that patterns
of poly drug use are exceedingly common. Alcohol forms part of this pattern
and is often not possible to draw any clear distinction between alcohol and
drug abusers.
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The symptoms, progression and consequences of alcohol and other
drug dependencies are similar, so much so that they can best be regarded as
varieties of the same condition. The tendency of alcohol services to disregard
drug use and of drug services to ignore alcohol use is artificially created
and is counter productive in terms of treatment. It has come about as a
result of historical accident.
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Alcohol and other Drugs Services should be integrated, however
it is important that the additional workload that this will create should be
properly resourced.
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Alcohol Services should come under the auspices of the National
Treatment Agency for Substance Misuse. If Alcohol remains separate there will
be duplication and two parallel systems would complicate matters to the
detriment of the quality of service delivery.
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There is evidence that children are experimenting with alcohol,
smoking, and drugs as early as 9 years old. These factors are predictive of
problems with substance abuse later on in life. Children who are identified as
being at greater risk should be supported with behaviour modifying classes.
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How,
in your experience, can we minimise and prevent the injuries that are presented
to A&E departments as a result of alcohol related assaults (often with glasses
and bottles) or home and workplace alcohol-related accidents?
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If a person is caught driving while
drunk, arrested or warned before or during an assault, the last drinking place
visited should be warned about serving alcohol or selling to this person.
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Companies should make it public
policy that alcohol beverages will not be served or allowed on the premises
during business hours. In addition companies should be given strong incentives
to implement comprehensive alcohol and drugs in the workplace policies.
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The Health and Safety Executive should
take a more proactive stance on workplace alcohol and drug policies than it does
at present – allowing an employee to work whilst under the influence of alcohol
should be an offence and employers should be required to demonstrate that they
have “safe systems of work” in place to ensure that their employees and the
general public are not exposed to risk.
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All local and central government
contractors should be required to have workplace alcohol and drugs policies in
place as a condition of the contract.
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Again, the dangers of alcohol
should be taught to children primary school. Early education is the most
effective method.
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What
are the links between alcohol misuse and mental health problem, including
depression and suicide? How are services-both those aimed at prevention and
treatment best co-ordinated?
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Studies have indicated that women are usually undergoing some
type of depression before they start drinking on a regular basis. Severe
depression can lead to suicide.
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Care
co-ordination is the key here – there are several services in existence
specialising in working with dual disorder clients and the beginnings of a
substantial knowledge base.
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In
the long term a similar system to the “Models of Care” being implemented through
the National Treatment
Agency for Substance Misuse will be called for –
another reason to integrate alcohol with other drugs services.
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What
evidence is there about the links between alcohol and crime and the links
between alcohol and anti-social behaviour? Are there key studies or pieces of
evidence you think we should be aware of? Where are there gaps in the evidence?
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The behaviour patterns of many FAS/FAE, children/adults bring
them into conflict with the law. The problems of poor judgement and gullibility
that became apparent in childhood are not outgrown.
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The criminal justice system needs
to find a more appropriate response to individuals with these disabilities.
Recent research studies have revealed that our prison system is filled with
adults with Foetal Alcohol Syndrome.
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This
opportunity that presents itself to members of the judicial system is directly
related to the concept of early identification and intervention.
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Commonly, it is the police officer
on a street beat that encounters an intoxicated pregnant woman. Knowledge of
community referral resources for pregnant women in crisis provides an
alternative to incarceration and places the woman in a system designed to
support the pregnant woman in her efforts not to drink alcohol.
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The best method of dealing with
FAS related crime is to prevent it. Across the world several innovative projects
have been developed that take the weaknesses commonly associated with FAS teens
and adults and turn them into strengths. This gives self-esteem a valuable boost
that thereby facilitates further rehabilitation.
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In
your experience, is alcohol a factor in habitual re-offending? Does it lead to
particular types of crime? How far does it lead to one-off offences?
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Dr Ann Streissguth of the
University of Washington Foetal alcohol (FAS) and Drug unit has said that one of
the most distinctive characteristics of a person with FAS is the inability to
learn from their mistakes. It is self evident that this type of inability could
contribute to recidivism.
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FAS affect men and women of all
ages and they commit a wide variety of crimes. One of their characteristics is
their tendency to copy what others do. Thus, a person with FAS might be
incarcerated for a minor crime and then follow a fellow inmate into a more
serious crime, often without recognising the inherent wrong of the other
person. Dr Streissguth has indicated that she feels the most outstanding
characteristic of a person with FAS is the inability to connect an action with
its consequences. Because brain cell damage is permanent, it is unlikely that
any modern day punishment will deter the person with FAS from committing more
and more serious crimes once they are led in that direction.
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To
what extent can alcohol convincingly be demonstrated to be a factor in criminal
and disorderly behaviour? How much is perception and how much is reality? What
fuels the perceptions and are they accurate?
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A study by Dr Julianne Conry on
the University of British Columbia has concluded that nearly 60% of the men he
studied in the Canadian penal system may be prenatally alcohol affected. Further
studies need to be conducted. However, Dr William Healy has previously explored
the connection between prenatal alcohol exposure and criminal activity as far
back as 1918. Further research of older literature may reveal more studies of
the connection between prenatal alcohol exposure and crime.
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Alcohol
is far from being the only factor in crime and disorder. Other factors are
involved - for example, town centre disorder can be influenced by lack of
availability of transport or design of environment. What other factors might be
involved? How easy are these factors to influence? Who is responsible for them?
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If
there is an excessive drop out rate in the schools and an increase in juvenile
delinquency, the Government will be blamed. If the country has growing rates of
mental health problems, violence, domestic abuse and increased use of health and
mental facilities, the responsibility of improving these statistics with fall on
the Government. All these things can and will happen if the Government allows
problems like Foetal Alcohol Syndrome and alcohol abuse to go unchecked in the
country.
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Starting an early education program will go a long way in preventing other
problems. The important thing is to start now and not allow these problems to
proliferate.
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How
does the impact of alcohol on urban environments differ from its impact on rural
environments? What are the differences between urban and rural drinking patterns
and how do they affect those communities and surroundings.
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The World Health
Organisation’s Global Status Report on Alcohol indicates that alcoholism might
be even more of a problem in rural area. The hard work and lack of close
neighbours encourages the use of alcohol.
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Individuals affected by FAS
usually difficult to employ, they might feel that an urban area could offer
better opportunities and travel there to seek a job, thus taking a rural problem
to the city. There is a general tendency for young people to seek the excitement
of city life.
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The problem with urban life is the
anonymity and psychological distress that is encountered may tend to exacerbate
rather than diminish personal problems and addictions issues.
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To what extent can impacts
on the environment (including crime, disorder, noise and waste) be designed out,
for example by use of plastic drinking glasses? Are there examples of good
practice it would be helpful for us to be aware of?
-
While we do not oppose attempts to
reduce the impact on the environment and we are aware of the approaches being
tried such as part the various communities against drugs and crime and disorder
initiatives we feel that we must point out that these initiatives only address
the symptoms, rather than the causes of problems.
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There are also issues involved
here concerning personal responsibility. To what extent are we likely to
perpetuate problems in the long term if we start to take responsibility for the
actions of individuals?
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Manipulation
of the environment is a treatment after the fact and is always less effective
than prevention. Several after-the-fact suggestions were offered in Question 20.
However, early education of children about the dangers of alcohol is the best
and most complete method of dealing with the current problems of alcohol.
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There
are some examples of good practice where a range of organisations responsible
for dealing with different aspects of alcohol have successfully ’combined
efforts’ and shared information to tackle alcohol related crime and disorder
together. Should this approach be encouraged more widely? What inhibits
organisations or communities from taking such an approach?
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The
only thing inhibiting agencies and communities from working in the way suggested
is the lack of a holistic approach across all agencies. Criminal Justice
agencies still see alcohol as a legal problem, Medical Practitioners perceive it
to be a medical problem and Social Workers perceive it to be a social
problem. There is also a traditional lack of trust between these various sectors
and also between the statutory and voluntary sectors.
-
There are many good examples of
initiatives within the drugs field where this approach is being adopted.
-
Those areas that have chosen to
have Drug and Alcohol Action Teams rather than just Drug Action Teams will have
an innate advantage.
-
Is it
right that anti-crime and anti-social behaviour initiatives need to be targeted
on young people?
-
Anti-crime
and anti-social behaviour initiatives need to be targeted on criminals and those
individuals behaving in an anti social manner. If they are young people then so
be it. To target young people as such however merely serves to formalise the
“generation war”, this will increase young peoples sense of alienation and
powerlessness and is likely to increase problems rather than minimise them.
-
Initiatives for young people need
to be supportive and educational, inclusive rather than exclusive and teach them
a sense of their own value. Young people are not stupid however. They will soon
see through any schemes of this kind if individuals who do not truly believe in
these values deliver them.
-
It is important that measures to
prevent FAS and to support both individuals and families affected by FAS are
part of the National Strategy and those FAS initiatives are seen as contributing
to crime reduction by virtue of the links between FAS and crime.
-
Should we be encouraging different drinking patterns – in terms of time spent
drinking, location of drinking etc – in order to tackle alcohol-related crime
and disorder?
-
It
would seem to be self evident that we should not be encouraging drinking at
all! There is a direct link between the amounts of alcohol we consume as a
nation and the problems that we incur.
-
A large proportion of alcohol
related crimes are committed by people who are alcohol dependent. Alcohol
dependent individuals will drink anywhere at any time that they can. Initiatives
to encourage different drinking patterns are not going to have any positive
effect and may well have a negative effect if the initiatives concerned result
in alcohol being more freely available because of extended licensing hours etc.
Overall the effects of such
initiatives are difficult to gauge and predict because of the number of
variables involved.
-
How
can the law on, and policing approaches to public drunkenness and street
drinking help to tackle these problems? Are existing controls and powers (such
as those for local authorities to introduce no drinking zones) effective? Are
they sufficient?
-
No public control or attempt to
control excessive drinking, underage drinking or violence while drinking is
going to change the underlying problem of people who drink because they have
problems or of people who are alcohol dependent.
-
Initiatives such as these address
only the symptoms rather than the causes and offer some measure of protection
for the non afflicted while the afflicted take their problem elsewhere. While it
is valid and reasonable to attempt to protect society from the consequences of
an individuals drinking this must not be confused with offering help to the
individual concerned.
-
One
person’s good evening out can be another person’s sleepless night. Are there
principles to guide the balance of individual rights and responsibilities?
-
There
is an old adage that we all have rights, as long as they do not impinge on
another person’s right to have rights.
-
There is an underlying problems
when a person needs to drink excessively in order to have a supposedly “good
time”. Government and communities need to work on these issues so that “good
time” is not defined as an all nighter at the pub.
-
This will require a major campaign
over a prolonged period of time as for many people in many parts of the country
this will require a significant cultural change.
-
That it is possible to bring about
such a change is evidenced by the change in the publics’ attitude to drunk
driving.
-
Drink-drive policies are generally acknowledged to have been successful. What
can we learn from them?
-
See comment in 34 above.
-
Domestic violence is often with alcohol misuse-either by the perpetrator or on
occasion, by the victim. What in your experience is the nature of this link and
what would you see as good practice in tackling the interrelationship between
domestic violence and alcohol misuse?
-
Excessive drinking may often bring
out the worst in a person. This is especially true in a diminishing job market
and when a job does not fulfil the needs of people involved in a relationship.
Emotional inferiority often leads to “picking” on weaker members in family.
-
In Japan, the child abuse rate has
jumped 1600% since 1991. The late 1980s also saw an increase in the use of
alcohol by pregnant women. It is entirely possible that symptoms of FAS,
such as problems with school work, especially maths, problems with other
children, indiscriminate touching and fondling, inability to do sequential
tasks, inability to follow verbal instructions, unusual food preferences,
medical problems with allergies and respiratory infections, eye and hearing
disabilities or deficiencies lead to family arguments.
-
It has been shown that an increase
in medical and educational problems (which in turn lead to financial problems)
causes great stress in families that can often lead to violent outbreaks that
are fuelled more intensely with alcohol effected individuals are involved.
-
Which
children and young people do you see as being most vulnerable to the
consequences of alcohol misuse?
-
There is plenty of research to
show that children raised in families where there is a history of substance
misuse are particularly at risk, this appears to be at least in part a matter of
genetic predisposition.
-
US Research has shown that it may
be possible to identify those most at risk of developing problems later in life
by means of enhanced EEG’s – i.e. there is a observable physical difference in
brain function.
-
US research has also shown that
prenatal exposure to alcohol, in particular FAS, is highly predictive of alcohol
related problems in later life.
-
These individuals
also suffer from other problems: they experience neurological damage which is
expressed as hyperactivity, behavioural problems, learning disabilities and a
general inability to function normally in a social milieu.
-
Research in other countries has shown that FAS individuals
who are not supported at an early age either end up in prison or on the
streets. Diagnosis can be made at birth and from then on continuous support from
various agencies can make a valuable contribution.
-
What
other groups would you identify as particularly at risk and vulnerable to
harmful effects of alcohol?
-
There is evidence to suggest that
groups who have lost their cultural identities and become marginalised are at a
higher risk, particularly if they have no cultural history of alcohol
use. Historical examples would include Native Americans, including Eskimos, and
Australian Aborigines. All of these groups have developed high levels of alcohol
related problems including FAS.
-
It is important to realise that
although some groups may be particularly at risk strategies cannot afford to
ignore the fact that in fact anyone can be at risk. All groups from the social
strata are at risk without adequate education and information.
-
The unborn child, who hasn’t a
voice, is at risk!
-
Those
who are vulnerable to consequences of alcohol misuse often have complex problems
(for example they may be homeless and may have additional mental health or drug
problems) and such factors may inter related. What key factors need to be
understood in addition to alcohol use that contributes to maintaining the
problems facing such groups? Which of these factors should interventions be
aimed at?
In respect of individuals who are affected by FAS:
-
Children
and adults with FAS have unusual set physical reactions to the environment that
affect not only the way they perceive the world but also how they physically
react to it.
-
Mentally the person with FAS may not show
any emotional attachments.
-
They may be unable to make reasonable
connections between thought A and thought B. Abstract thinking is extremely
difficult for them. They may be very literal in their thinking. They may be
very concrete in their learning skills, unable to make adjustments or changes
once a task is learned.
-
Many times they are thought to
have no consciences.
-
They may be unable to follow verbal
instructions without visual aids. They might not be able to stay on task with
out external help.
-
They may be very self-centred.
-
They may seem gifted in some areas and
severely delayed in others.
-
They may seem terribly impractical.
-
The most outstanding behavioural
problem with a person who has FAS is the inability to connect an action with its
consequences.
-
Physically, sequential
instructions and the required tasks are hard for the child or adult who has FAS.
-
Hearing may appear to be within
normal ranges but special hearing examinations often reveal deficiencies in
certain sound levels that make learning difficult. Noises may be too loud or too
soft. The child may hear things beyond the hearing range of normal children.
-
Vision may be myopic or spotty and
difficult to diagnose. Lights and moving objects often interfere with their
ability to concentrate.
-
Clothes may be very comfortable or
very uncomfortable. Hyper and hypo sensitive may cause food allergies and/or
rashes.
Inability to recognise when they
have to go to the toilet, or when they need personal hygiene.
Nerve damage to organs might cause
insufficient food processing and problems with elimination.
The
best time for intervention is before FAS children encounter the frustration of
the school environment. This means diagnosis soon after birth and before school
starts.
-
How
can the services provided by the state and others to vulnerable groups with
complex problems be joined-up most effectively? Are there examples of joined-up
delivery it would be helpful for us to be aware of? What gets in the way of
joining up services?
-
See question 29 – similar reasons apply.
-
There are again plenty of examples of good practice from the
drugs field.
-
There is a severe lack of political will to tackle alcohol
related problems that is not evident when it comes to drugs – brewers and
distillers are seen as valued members of the business community and are to be
consulted while other drug dealers are not.
-
Unfortunately until the time comes when alcohol is seen as
the killer drug that it is there will probably not be much progress. Again
this is a matter of cultural change.
-
Education is the most effective means to bring about
change. This should involve not just public education but also the
professional education of medical and allied health professionals, teachers,
social workers and criminal justice professionals.
-
How
realistically can these vulnerable groups be dealt with by mainstream services
and how far do they need services, which are tailored to individual groups and
indeed to individuals on a case-by-case basis? What is your experience?
-
Mainstream services in the UK are
under funded.
-
Funding itself is not the answer – until
the mainstream services receive substantially more training in alcohol related
issues, especially in recognition and assessment skills, further resources
will only be squandered on ineffective schemes.
-
There must be more cooperation
between professionals, educators and public agencies.
-
There needs to be an effective
case management and care co-ordination system in place before this co-operation
can prove really effective.
-
The role of self-help groups such
as Alcoholics Anonymous has been consistently ignored and minimised. They help
many thousands of people with alcohol dependency problems annually, there are
groups right across the country and they provide a free resource that does not
cost the exchequer a penny!
-
What
should be the objectives in this area? Is the aim to raise levels of awareness?
Is it to inform more specifically? Is it to change behaviour? Are there any
particularly successful or unsuccessful examples we should be aware of?
With regard to FAS the objectives should be:
-
To undertake research on Foetal
Alcohol Syndrome, in particular it’s prevalence, with a view to establishing
baseline statistics.
-
To review the international
evidence base regarding effective prevention and intervention strategies for FAS.
(This will minimise the cost).
-
To
initiate projects designed to raise the profile of Foetal Alcohol Syndrome in
the general community, the caring professions and within the alcohol and other
drugs fields.
-
To develop systems to identify and
support children who are affected by Foetal Alcohol Syndrome or its effects.
-
To inform and educate the
professionals who pass on facts about alcohol.
-
To
review in the light of current worldwide research and to change where
appropriate the advice given to women regarding the consumption of alcohol while
pregnant and breastfeeding.
-
To ensure that alcohol awareness
campaigns raise the level of awareness that alcohol is a drug and that its
long-term effects are cumulative.
-
To ensure that all children and
young people receive education about the dangers of drinking alcohol including
the effects on the unborn child and binge drinking.
-
Given
clear objectives, what is the evidence on the effectiveness of these
approaches? What do they actually achieve? How can their effectiveness be
measured?
-
The objectives mentioned in 41 above will
create baseline figures against which effectiveness can be measured. In the
meantime there needs to be a country wide survey that can produce statistics
relating to alcohol and its effects on the wider community.
-
FASawareUK host a support group and in our experience we are not dealing
with biological parents. The parents looking for help and support are adopters
and fosterers.
-
Statistics need to be compiled,
stating with children’s homes, and schools where there are known
adopted/fostered children to investigate whether these children are already on
special measures for behaviour and learning difficulties or indeed they are
receiving Special Needs Support.
-
Alongside
this, children who have biological parents but are showing the same signs of
behaviour and learning needs require diagnosis. The difficulty here is that
natural parents are in denial when it comes to assessing their children’s
special needs.
-
Schools have an ongoing “Special
Needs” process but the teachers are limited in their knowledge of how a child’s
behaviour is affected by alcohol either through direct drinking or by his/her
mother when pregnant.
-
It is important that children
affected by FAS they are identified very early on and supported. This will help
in reducing the cost to the Government and the NHS in the long-term.
-
How
well is the sensible drinking message reaching its audience? Is it sufficiently
clear? What is the evidence on its penetration and its effect on behaviour?
-
It is very clear that message of
sensible drinking is not getting across to the public. A perfunctory examination
of the amount of highly sophisticated alcohol advertising in our media as
compared to the amount of health education material about alcohol should be
enough to explain why.
-
Increasingly alcohol advertising
is aimed at women and young people.
-
Until we can run campaigns that present
“not drinking” as being as fashionable, or more so, than drinking we are not
likely to be effective.
-
Sensible drinking promotions based
on fear are not as effective as those that promote not drinking as something
desirable. In other words sell what you do want rather than try to prevent what
you don’t!
-
To make a good positive start
introduce alcohol health warnings on alcohol containers, similar to those on
cigarettes and tobacco, include an honest warning of the lasting damage that
alcohol creates to the developing foetus.
-
How
well is scientific research feeding into alcohol education? Is the message
based on sound, unbiased and uncontroversial research and are new finding
effectively incorporated?
-
Should particular groups be targeted for information and communication? Is there
a need to provide more intensive alcohol education to groups other than young
people (e.g. elderly drinkers)?
-
Yes Children and young people, pregnant
mothers and prospective parents from all ethnic groups should
be targeted for education, information and communication.
-
Everyone
should be aware of the full facts about alcohol so that they can make the right
life changing choices. Foetal Alcohol Syndrome needs to be part of life
education for all.
-
Foetal Alcohol Syndrome is 100%
preventable with education and awareness, yet totally incurable.
-
What
is the role of schools, colleges, universities and other educational
institutions in providing alcohol education as well as support for
alcohol-related problems? How can we best establish and preserve healthy
learning environment?
-
There is a vital role for schools,
colleges, universities and other educational institutions in providing facts
about alcohol and its effects on people and future generations.
-
Information regarding the dangers
of alcohol consumption and the effects on the unborn child should be treated
with the same importance as drugs and smoking and incorporated into the national
curriculum.
-
There is a considerable body of US
research on the problems of alcohol use on campus that is worth examining.
-
Several US educational
establishments (at all levels) have formed the Association of Recovery Schools
with a view to providing specialised educational programmes for students in
recovery from alcohol dependency. This is a new way of combining support
services with education and is worth further research.
-
What
role is there for families/parents as role models or in education their children
on sensible levels of alcohol drinking and the risks of alcohol misuse? How can
they best be informed and engaged in this effort?
-
Education regarding the abuse of
alcohol should start in the home, but there is little or no evidence to suggest
that parents possess the knowledge or motivation at this time. This is because
they themselves can be ignorant of the facts. At the present time education in
school has to be paramount for the welfare of the child.
-
What
does experience show on the most effective means of getting messages across? Are
there circumstances in which the Government is particularly well placed to do
so, or conversely might be particularly unsuccessful?
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